Lynch syndrome is a gene alteration that raises your risk of certain cancers. These include bowel, womb and ovarian cancer.
Our guide to lynch syndrome has been made with experts, people with lynch syndrome and our Ask Eve nurses. It has all the information you need about Lynch syndrome, whether you’ve been offered testing or you have had a diagnosis.
Having Lynch syndrome does not mean you have or will get cancer. It just means you have a raised risk over your lifetime compared to someone without Lynch syndrome. Identifying people who have lynch syndrome can have important benefits like being able to try prevent some cancers. It can also help spot cancer early and help doctors decide on the best treatment.
If you have a family history of bowel or womb cancer, speak to your GP. Ask for a referral to your local genetics centre. You can also speak to our Ask Eve nurses for free and confidential advice.
1 in 400-450
people are thought to have Lynch syndrome
95%
of people with Lynch syndrome don’t know they have it
3 in 100
people have heard of Lynch syndrome
Speak to our Ask Eve Nurses
If you would like any further information or advice, our Ask Eve nurse service is here to help. You can get in touch for free and confidential advice on nurse@eveappeal.org.uk or 0808 802 0019.
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